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Very happy but confused Options
smith-j
#1 Posted : Tuesday, April 20, 2010 7:51:14 PM Quote
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Hi all

In my previous posts, I explained that my GP had told me I would need major surgery for a bladder and bowel prolapse and referred me to see the Consultant I saw 12 years ago for the same problem. Luckily I only had to wait for a couple of weeks for an appointment but worried myself sick the whole time as not only is the operation awful, it is a 10 week recuperation period. I was very down over the last two weeks thinking, please give me a break, I was diagnosed with RA 15 months ago and it has been very difficult coping with the RA, never mind further health problems.

Yesterday I saw the Consultant. You could have knocked me down with a feather. I do not have a bladder and bowel prolapse but may have separate problems with my bladder and bowel. Therefore no major surgery at the moment (hurrary). On Monday next week I have to have a Cystoscopy (investigation of inside of bladder) as a day patient and then he is going to refer me to a bowel specialist. All in all he said he would be very suprised if I have to have major surgery.

I am so relieved that the diagnosis is not what my GP thought and am keeping my fingers crossed, (but obviously not my legsBigGrin) that the surgeons knife has passed me by.

The Consultant is wondering if my RA is affecting my bladder and bowel. Although there is no prolapse, he seems to think the bladder and bowel are very weak. He is also wondering if the medication is affecting me, particularly the Methotrexate. Does RA also attack organs or just joints?

Jackie
xx

Damned76
#2 Posted : Tuesday, April 20, 2010 8:00:25 PM Quote
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What good news for you Jackie - so pleased but hope they manage to find out exactly what the problem is. It sounds like you are getting a good level of care and attention. I know that RA can affect the organs but don't have any personal experience. I'm sure someone will be able to help.

Julie x
LynW
#3 Posted : Tuesday, April 20, 2010 8:54:41 PM Quote
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Hi Jackie

Yes, RA can definitely affect organs as well as joints; I have an inflamed heart muscle when the RA flares and problems with the sternum. Methotrexate can cause problems with the kidneys and bladder so certainly worth considering as a possibility.

Sounds like you have someone good on your case! Fingers crossed for a positive outcome.

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

dorat
#4 Posted : Tuesday, April 20, 2010 9:16:55 PM Quote
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Hi Jackie,

That's great news that you don't need major surgery.
I agree with Lyn that both RA and mtx can affect internal organs and I hope they find out soon what is causing your problems.

Take care, Doreen xx
Lylie
#5 Posted : Tuesday, April 20, 2010 10:10:10 PM Quote
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I've been told that its the drugs we take for the RA that cause the organ problems. Good luck with the forthcoming tests anyway, hope they go well for you and NO surgery needed. Lxx
Always be aware that what you do might hurt others........and if it could, do nothing without careful consideration of the consequences
Calmwater22
#6 Posted : Tuesday, April 20, 2010 10:22:58 PM Quote
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Smile Hello Jackie
so pleased no major surgey for you,so sorry see you were left in such anxious mind set last few weeks.
good to see your to have invetisgative procedure i wish you well for this,be good for them know what it is.

thinking of you hugs.
Melly
cuddly cats make my world seem so much more fun
amanda_lewin
#7 Posted : Wednesday, April 21, 2010 12:29:38 AM Quote
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Dear Jackie,

Wow, what a wonderful piece of news....

Sadly, yes RA can affect organs although it is more rare than the joints, so it is a possibility.

I am praying for you and for a quick dx.

Love,

Amanda
joeyvt
#8 Posted : Wednesday, April 21, 2010 1:19:53 PM Quote
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Hi Jackie,

Fantastic news about not needing the surgery!

I can testify personally that RA does affect other organs. I have inflammation of the lungs and also of the bowels as a direct consequence of the RA.

The bowel specialist will probably want to have you in for some tests (endoscopies and colonoscopies) and take it from there. It won't be nearly as intrusive as the surgery would have been.

Good luck with Monday!

x x
Joanna
BarbieGirl
#9 Posted : Wednesday, April 21, 2010 5:51:42 PM Quote
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Hi Jackie, just read about your bowel and bladder problems, my friend also called Jacky, has to have the op that you now dont need. She has hers on 28th April, and was told to be off work for 8 weeks, but I wonder if she may need longer as she works with special needs children who have complex medical needs and profound and multiple learning difficulties, i.e. wheelchair users. Glad you dont have to have it, and hope they sort out your problems.
I wondered why at the appts they always ask about bowel problems, must be looking for problems re the RA, i had never even thought of it affecting anything other than major organs, so another thing I've learned!!Smile
BARBARA
smith-j
#10 Posted : Wednesday, April 21, 2010 10:14:26 PM Quote
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Thanks for all your replies and support.

Barbara - please tell your friend to be very careful. If she has the same procedure that I did when they go "up and in" as opposed to cutting her open, she will not realise how delicate everything is inside for months after. I have actually had this procedure twice previously and had to have the second one done a year later as I was coping with a 2 year old (lifting etc), housework and a full time job. I undid all the work the surgeon had done. Needless to say he was not very pleased with me and trussed me up like a turkey the second time, which is another reason why it has not prolapsed again as was originally thought by my GP. It has been twelve years since me last operation and I am still very careful not to lift anything too heavy. I hope everything goes well with your friend's operation.

Jackie
xx
Calmwater22
#11 Posted : Wednesday, April 21, 2010 10:54:34 PM Quote
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Brabs you nkow you said they ask re bowels its =becasue for 1 can get constipation issues due to some medication and also lupus diagnsois they ask about bowels.
must say mr garood is first 1 to ask me about my bladder and bowels,was quiteBlushing by it.
jackie hope all goes welland you start feel less confused,sorry hear how your op results were undone trussing turkey.
naughty turkeySmile
lv melly
cuddly cats make my world seem so much more fun
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